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What Does the Bible Say About Disabled People?

Bible verses about Disabled People

Source: What Does the Bible Say About Disabled People?

Disabled People

John 9:2-7 ESV / 705 helpful votes

And his disciples asked him, “Rabbi, who sinned, this man or his parents, that he was born blind?” Jesus answered, “It was not that this man sinned, or his parents, but that the works of God might be displayed in him. We must work the works of him who sent me while it is day; night is coming, when no one can work. As long as I am in the world, I am the light of the world.” Having said these things, he spat on the ground and made mud with the saliva. Then he anointed the man’s eyes with the mud …

Exodus 4:11 ESV / 661 helpful votes

Then the Lord said to him, “Who has made man’s mouth? Who makes him mute, or deaf, or seeing, or blind? Is it not I, the Lord?

Leviticus 19:14 ESV / 578 helpful votes

You shall not curse the deaf or put a stumbling block before the blind, but you shall fear your God: I am the Lord.

Luke 14:12-13 ESV / 380 helpful votes

He said also to the man who had invited him, “When you give a dinner or a banquet, do not invite your friends or your brothers or your relatives or rich neighbors, lest they also invite you in return and you be repaid. But when you give a feast, invite the poor, the crippled, the lame, the blind,

John 9:1-3 ESV / 363 helpful votes

As he passed by, he saw a man blind from birth. And his disciples asked him, “Rabbi, who sinned, this man or his parents, that he was born blind?” Jesus answered, “It was not that this man sinned, or his parents, but that the works of God might be displayed in him.

Romans 5:3-5 ESV / 355 helpful votes

More than that, we rejoice in our sufferings, knowing that suffering produces endurance, and endurance produces character, and character produces hope, and hope does not put us to shame, because God’s love has been poured into our hearts through the Holy Spirit who has been given to us.

2 Corinthians 12:9 ESV / 349 helpful votes

But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly of my weaknesses, so that the power of Christ may rest upon me.

Mark 1:40-45 ESV / 263 helpful votes

And a leper came to him, imploring him, and kneeling said to him, “If you will, you can make me clean.” Moved with pity, he stretched out his hand and touched him and said to him, “I will; be clean.” And immediately the leprosy left him, and he was made clean. And Jesus sternly charged him and sent him away at once, and said to him, “See that you say nothing to anyone, but go, show yourself to the priest and offer for your cleansing what Moses commanded, for a proof to them.” …

Luke 14:12-14 ESV / 255 helpful votes

He said also to the man who had invited him, “When you give a dinner or a banquet, do not invite your friends or your brothers or your relatives or rich neighbors, lest they also invite you in return and you be repaid. But when you give a feast, invite the poor, the crippled, the lame, the blind, and you will be blessed, because they cannot repay you. For you will be repaid at the resurrection of the just.”

John 9:1-41 ESV / 242 helpful votes

As he passed by, he saw a man blind from birth. And his disciples asked him, “Rabbi, who sinned, this man or his parents, that he was born blind?” Jesus answered, “It was not that this man sinned, or his parents, but that the works of God might be displayed in him. We must work the works of him who sent me while it is day; night is coming, when no one can work. As long as I am in the world, I am the light of the world.” …

1 Peter 5:10 ESV / 228 helpful votes

And after you have suffered a little while, the God of all grace, who has called you to his eternal glory in Christ, will himself restore, confirm, strengthen, and establish you.

Psalm 139:13-14 ESV / 223 helpful votes

For you formed my inward parts; you knitted me together in my mother’s womb. I praise you, for I am fearfully and wonderfully made. Wonderful are your works; my soul knows it very well.

Leviticus 21:16-23 ESV / 222 helpful votes

And the Lord spoke to Moses, saying, “Speak to Aaron, saying, None of your offspring throughout their generations who has a blemish may approach to offer the bread of his God. For no one who has a blemish shall draw near, a man blind or lame, or one who has a mutilated face or a limb too long, or a man who has an injured foot or an injured hand, or a hunchback or a dwarf or a man with a defect in his sight or an itching disease or scabs or crushed testicles. …

Matthew 15:31 ESV / 218 helpful votes

So that the crowd wondered, when they saw the mute speaking, the crippled healthy, the lame walking, and the blind seeing. And they glorified the God of Israel.

Deuteronomy 27:18 ESV / 217 helpful votes

“‘Cursed be anyone who misleads a blind man on the road.’ And all the people shall say, ‘Amen.’

Luke 14:13-14 ESV / 206 helpful votes

But when you give a feast, invite the poor, the crippled, the lame, the blind, and you will be blessed, because they cannot repay you. For you will be repaid at the resurrection of the just.”

Mark 2:1-12 ESV / 206 helpful votes

And when he returned to Capernaum after some days, it was reported that he was at home. And many were gathered together, so that there was no more room, not even at the door. And he was preaching the word to them. And they came, bringing to him a paralytic carried by four men. And when they could not get near him because of the crowd, they removed the roof above him, and when they had made an opening, they let down the bed on which the paralytic lay. And when Jesus saw their faith, he said to the paralytic, “Son, your sins are forgiven.” …

Luke 14:1-35 ESV / 197 helpful votes

One Sabbath, when he went to dine at the house of a ruler of the Pharisees, they were watching him carefully. And behold, there was a man before him who had dropsy. And Jesus responded to the lawyers and Pharisees, saying, “Is it lawful to heal on the Sabbath, or not?” But they remained silent. Then he took him and healed him and sent him away. And he said to them, “Which of you, having a son or an ox that has fallen into a well on a Sabbath day, will not immediately pull him out?” …

Matthew 8:5-13 ESV / 196 helpful votes

When he entered Capernaum, a centurion came forward to him, appealing to him, “Lord, my servant is lying paralyzed at home, suffering terribly.” And he said to him, “I will come and heal him.” But the centurion replied, “Lord, I am not worthy to have you come under my roof, but only say the word, and my servant will be healed. For I too am a man under authority, with soldiers under me. And I say to one, ‘Go,’ and he goes, and to another, ‘Come,’ and he comes, and to my servant, ‘Do this,’ and he does it.” …

Galatians 6:2 ESV / 192 helpful votes

Bear one another’s burdens, and so fulfill the law of Christ.

Matthew 18:4-5 ESV / 191 helpful votes

Whoever humbles himself like this child is the greatest in the kingdom of heaven. “Whoever receives one such child in my name receives me,

Mark 7:32-16:20 ESV / 189 helpful votes

And they brought to him a man who was deaf and had a speech impediment, and they begged him to lay his hand on him. And taking him aside from the crowd privately, he put his fingers into his ears, and after spitting touched his tongue. And looking up to heaven, he sighed and said to him, “Ephphatha,” that is, “Be opened.” And his ears were opened, his tongue was released, and he spoke plainly. And Jesus charged them to tell no one. But the more he charged them, the more zealously they proclaimed it. …

John 10:10 ESV / 184 helpful votes

The thief comes only to steal and kill and destroy. I came that they may have life and have it abundantly.

Philippians 2:3-4 ESV / 177 helpful votes

Do nothing from rivalry or conceit, but in humility count others more significant than yourselves. Let each of you look not only to his own interests, but also to the interests of others.

Genesis 27:1 ESV / 177 helpful votes

When Isaac was old and his eyes were dim so that he could not see, he called Esau his older son and said to him, “My son”; and he answered, “Here I am.”

Galatians 4:13-15 ESV / 175 helpful votes

You know it was because of a bodily ailment that I preached the gospel to you at first, and though my condition was a trial to you, you did not scorn or despise me, but received me as an angel of God, as Christ Jesus. What then has become of the blessing you felt? For I testify to you that, if possible, you would have gouged out your eyes and given them to me.

Romans 5:12 ESV / 172 helpful votes

Therefore, just as sin came into the world through one man, and death through sin, and so death spread to all men because all sinned—

Micah 4:6-7 ESV / 170 helpful votes

In that day, declares the Lord, I will assemble the lame and gather those who have been driven away and those whom I have afflicted; and the lame I will make the remnant, and those who were cast off, a strong nation; and the Lord will reign over them in Mount Zion from this time forth and forevermore.

Matthew 25:40 ESV / 169 helpful votes

And the King will answer them, ‘Truly, I say to you, as you did it to one of the least of these my brothers, you did it to me.’

Matthew 21:14 ESV / 169 helpful votes

And the blind and the lame came to him in the temple, and he healed them.

1 Kings 13:4 ESV / 168 helpful votes

And when the king heard the saying of the man of God, which he cried against the altar at Bethel, Jeroboam stretched out his hand from the altar, saying, “Seize him.” And his hand, which he stretched out against him, dried up, so that he could not draw it back to himself.

2 Samuel 9:1-13 ESV / 167 helpful votes

And David said, “Is there still anyone left of the house of Saul, that I may show him kindness for Jonathan’s sake?” Now there was a servant of the house of Saul whose name was Ziba, and they called him to David. And the king said to him, “Are you Ziba?” And he said, “I am your servant.” And the king said, “Is there not still someone of the house of Saul, that I may show the kindness of God to him?” Ziba said to the king, “There is still a son of Jonathan; he is crippled in his feet.” The king said to him, “Where is he?” And Ziba said to the king, “He is in the house of Machir the son of Ammiel, at Lo-debar.” Then King David sent and brought him from the house of Machir the son of Ammiel, at Lo-debar. …

1 Samuel 4:15 ESV / 167 helpful votes

Now Eli was ninety-eight years old and his eyes were set so that he could not see.

Judges 16:21 ESV / 167 helpful votes

And the Philistines seized him and gouged out his eyes and brought him down to Gaza and bound him with bronze shackles. And he ground at the mill in the prison.

Genesis 19:11 ESV / 167 helpful votes

And they struck with blindness the men who were at the entrance of the house, both small and great, so that they wore themselves out groping for the door.

Mark 8:22-26 ESV / 163 helpful votes

And they came to Bethsaida. And some people brought to him a blind man and begged him to touch him. And he took the blind man by the hand and led him out of the village, and when he had spit on his eyes and laid his hands on him, he asked him, “Do you see anything?” And he looked up and said, “I see men, but they look like trees, walking.” Then Jesus laid his hands on his eyes again; and he opened his eyes, his sight was restored, and he saw everything clearly. And he sent him to his home, saying, “Do not even enter the village.”

Matthew 11:4-5 ESV / 163 helpful votes

And Jesus answered them, “Go and tell John what you hear and see: the blind receive their sight and the lame walk, lepers are cleansed and the deaf hear, and the dead are raised up, and the poor have good news preached to them.

1 Corinthians 12:12-26 ESV / 161 helpful votes

For just as the body is one and has many members, and all the members of the body, though many, are one body, so it is with Christ. For in one Spirit we were all baptized into one body—Jews or Greeks, slaves or free—and all were made to drink of one Spirit. For the body does not consist of one member but of many. If the foot should say, “Because I am not a hand, I do not belong to the body,” that would not make it any less a part of the body. And if the ear should say, “Because I am not an eye, I do not belong to the body,” that would not make it any less a part of the body. …

Romans 8:28 ESV / 160 helpful votes

And we know that for those who love God all things work together for good, for those who are called according to his purpose.

Isaiah 35:5-6 ESV / 160 helpful votes

Then the eyes of the blind shall be opened, and the ears of the deaf unstopped; then shall the lame man leap like a deer, and the tongue of the mute sing for joy. For waters break forth in the wilderness, and streams in the desert;

Revelation 1:1-20 ESV / 158 helpful votes

The revelation of Jesus Christ, which God gave him to show to his servants the things that must soon take place. He made it known by sending his angel to his servant John, who bore witness to the word of God and to the testimony of Jesus Christ, even to all that he saw. Blessed is the one who reads aloud the words of this prophecy, and blessed are those who hear, and who keep what is written in it, for the time is near. John to the seven churches that are in Asia: Grace to you and peace from him who is and who was and who is to come, and from the seven spirits who are before his throne, and from Jesus Christ the faithful witness, the firstborn of the dead, and the ruler of kings on earth. To him who loves us and has freed us from our sins by his blood …

Matthew 5:5 ESV / 153 helpful votes

“Blessed are the meek, for they shall inherit the earth.

Genesis 1:26 ESV / 152 helpful votes

Then God said, “Let us make man in our image, after our likeness. And let them have dominion over the fish of the sea and over the birds of the heavens and over the livestock and over all the earth and over every creeping thing that creeps on the earth.”

Ephesians 2:10 ESV / 151 helpful votes

For we are his workmanship, created in Christ Jesus for good works, which God prepared beforehand, that we should walk in them.

Matthew 15:29-31 ESV / 148 helpful votes

Jesus went on from there and walked beside the Sea of Galilee. And he went up on the mountain and sat down there. And great crowds came to him, bringing with them the lame, the blind, the crippled, the mute, and many others, and they put them at his feet, and he healed them, so that the crowd wondered, when they saw the mute speaking, the crippled healthy, the lame walking, and the blind seeing. And they glorified the God of Israel.

Revelation 1:1 ESV / 147 helpful votes

The revelation of Jesus Christ, which God gave him to show to his servants the things that must soon take place. He made it known by sending his angel to his servant John,

Job 29:15 ESV / 146 helpful votes

I was eyes to the blind and feet to the lame.

John 9:3 ESV / 142 helpful votes

Jesus answered, “It was not that this man sinned, or his parents, but that the works of God might be displayed in him.

Isaiah 53:1-12 ESV / 142 helpful votes

Who has believed what he has heard from us? And to whom has the arm of the Lord been revealed? For he grew up before him like a young plant, and like a root out of dry ground; he had no form or majesty that we should look at him, and no beauty that we should desire him. He was despised and rejected by men; a man of sorrows, and acquainted with grief; and as one from whom men hide their faces he was despised, and we esteemed him not. Surely he has borne our griefs and carried our sorrows; yet we esteemed him stricken, smitten by God, and afflicted. But he was wounded for our transgressions; he was crushed for our iniquities; upon him was the chastisement that brought us peace, and with his stripes we are healed. …

Leviticus 19:4 ESV / 141 helpful votes

Do not turn to idols or make for yourselves any gods of cast metal: I am the Lord your God.

2 Kings 15:5 ESV / 140 helpful votes

And the Lord touched the king, so that he was a leper to the day of his death, and he lived in a separate house. And Jotham the king’s son was over the household, governing the people of the land.

2 Samuel 4:4 ESV / 139 helpful votes

Jonathan, the son of Saul, had a son who was crippled in his feet. He was five years old when the news about Saul and Jonathan came from Jezreel, and his nurse took him up and fled, and as she fled in her haste, he fell and became lame. And his name was Mephibosheth.

Matthew 19:12 ESV / 133 helpful votes

For there are eunuchs who have been so from birth, and there are eunuchs who have been made eunuchs by men, and there are eunuchs who have made themselves eunuchs for the sake of the kingdom of heaven. Let the one who is able to receive this receive it.”

Isaiah 43:8 ESV / 132 helpful votes

Bring out the people who are blind, yet have eyes, who are deaf, yet have ears!

Leviticus 21:18 ESV / 132 helpful votes

For no one who has a blemish shall draw near, a man blind or lame, or one who has a mutilated face or a limb too long,

Matthew 15:30 ESV / 130 helpful votes

And great crowds came to him, bringing with them the lame, the blind, the crippled, the mute, and many others, and they put them at his feet, and he healed them,

Matthew 5:1-48 ESV / 125 helpful votes

Seeing the crowds, he went up on the mountain, and when he sat down, his disciples came to him. And he opened his mouth and taught them, saying: “Blessed are the poor in spirit, for theirs is the kingdom of heaven. “Blessed are those who mourn, for they shall be comforted. “Blessed are the meek, for they shall inherit the earth. …

Leviticus 21:17-23 ESV / 125 helpful votes

“Speak to Aaron, saying, None of your offspring throughout their generations who has a blemish may approach to offer the bread of his God. For no one who has a blemish shall draw near, a man blind or lame, or one who has a mutilated face or a limb too long, or a man who has an injured foot or an injured hand, or a hunchback or a dwarf or a man with a defect in his sight or an itching disease or scabs or crushed testicles. No man of the offspring of Aaron the priest who has a blemish shall come near to offer the Lord‘s food offerings; since he has a blemish, he shall not come near to offer the bread of his God. …

Psalm 71:9 ESV / 124 helpful votes

Do not cast me off in the time of old age; forsake me not when my strength is spent.

1 Kings 15:23 ESV / 122 helpful votes

Now the rest of all the acts of Asa, all his might, and all that he did, and the cities that he built, are they not written in the Book of the Chronicles of the Kings of Judah? But in his old age he was diseased in his feet.

Matthew 5:42 ESV / 120 helpful votes

Give to the one who begs from you, and do not refuse the one who would borrow from you.

Jeremiah 31:8 ESV / 120 helpful votes

Behold, I will bring them from the north country and gather them from the farthest parts of the earth, among them the blind and the lame, the pregnant woman and she who is in labor, together; a great company, they shall return here.

2 Kings 7:1-20 ESV / 120 helpful votes

But Elisha said, “Hear the word of the Lord: thus says the Lord, Tomorrow about this time a seah of fine flour shall be sold for a shekel, and two seahs of barley for a shekel, at the gate of Samaria.” Then the captain on whose hand the king leaned said to the man of God, “If the Lord himself should make windows in heaven, could this thing be?” But he said, “You shall see it with your own eyes, but you shall not eat of it.” Now there were four men who were lepers at the entrance to the gate. And they said to one another, “Why are we sitting here until we die? If we say, ‘Let us enter the city,’ the famine is in the city, and we shall die there. And if we sit here, we die also. So now come, let us go over to the camp of the Syrians. If they spare our lives we shall live, and if they kill us we shall but die.” So they arose at twilight to go to the camp of the Syrians. But when they came to the edge of the camp of the Syrians, behold, there was no one there. …

Mark 16:15 ESV / 118 helpful votes

And he said to them, “Go into all the world and proclaim the gospel to the whole creation.

Leviticus 21:16 ESV / 118 helpful votes

And the Lord spoke to Moses, saying,

John 9:1 ESV / 115 helpful votes

As he passed by, he saw a man blind from birth.

Mark 7:24-37 ESV / 114 helpful votes

And from there he arose and went away to the region of Tyre and Sidon. And he entered a house and did not want anyone to know, yet he could not be hidden. But immediately a woman whose little daughter had an unclean spirit heard of him and came and fell down at his feet. Now the woman was a Gentile, a Syrophoenician by birth. And she begged him to cast the demon out of her daughter. And he said to her, “Let the children be fed first, for it is not right to take the children’s bread and throw it to the dogs.” But she answered him, “Yes, Lord; yet even the dogs under the table eat the children’s crumbs.” …

Genesis 48:10 ESV / 114 helpful votes

Now the eyes of Israel were dim with age, so that he could not see. So Joseph brought them near him, and he kissed them and embraced them.

Romans 8:18 ESV / 105 helpful votes

For I consider that the sufferings of this present time are not worth comparing with the glory that is to be revealed to us.

Leviticus 21:1-24 ESV / 104 helpful votes

And the Lord said to Moses, “Speak to the priests, the sons of Aaron, and say to them: No one shall make himself unclean for the dead among his people, except for his closest relatives, his mother, his father, his son, his daughter, his brother, or his virgin sister (who is near to him because she has had no husband; for her he may make himself unclean). He shall not make himself unclean as a husband among his people and so profane himself. They shall not make bald patches on their heads, nor shave off the edges of their beards, nor make any cuts on their body. …

Luke 1:20 ESV / 98 helpful votes

And behold, you will be silent and unable to speak until the day that these things take place, because you did not believe my words, which will be fulfilled in their time.”

Matthew 11:5 ESV / 98 helpful votes

The blind receive their sight and the lame walk, lepers are cleansed and the deaf hear, and the dead are raised up, and the poor have good news preached to them.

Psalm 115:4-8 ESV / 92 helpful votes

Their idols are silver and gold, the work of human hands. They have mouths, but do not speak; eyes, but do not see. They have ears, but do not hear; noses, but do not smell. They have hands, but do not feel; feet, but do not walk; and they do not make a sound in their throat. Those who make them become like them; so do all who trust in them.

Leviticus 19:18 ESV / 92 helpful votes

You shall not take vengeance or bear a grudge against the sons of your own people, but you shall love your neighbor as yourself: I am the Lord.

1 John 3:17 ESV / 90 helpful votes

But if anyone has the world’s goods and sees his brother in need, yet closes his heart against him, how does God’s love abide in him?

Proverbs 31:8 ESV / 84 helpful votes

Open your mouth for the mute, for the rights of all who are destitute.

Romans 3:23 ESV / 79 helpful votes

For all have sinned and fall short of the glory of God,

Exodus 4:10-12 ESV / 78 helpful votes

But Moses said to the Lord, “Oh, my Lord, I am not eloquent, either in the past or since you have spoken to your servant, but I am slow of speech and of tongue.” Then the Lord said to him, “Who has made man’s mouth? Who makes him mute, or deaf, or seeing, or blind? Is it not I, the Lord? Now therefore go, and I will be with your mouth and teach you what you shall speak.”

Romans 8:8 ESV / 74 helpful votes

Those who are in the flesh cannot please God.

John 5:1-47 ESV / 72 helpful votes

After this there was a feast of the Jews, and Jesus went up to Jerusalem. Now there is in Jerusalem by the Sheep Gate a pool, in Aramaic called Bethesda, which has five roofed colonnades. In these lay a multitude of invalids—blind, lame, and paralyzed. One man was there who had been an invalid for thirty-eight years. When Jesus saw him lying there and knew that he had already been there a long time, he said to him, “Do you want to be healed?” …

John 3:16-17 ESV / 72 helpful votes

“For God so loved the world, that he gave his only Son, that whoever believes in him should not perish but have eternal life. For God did not send his Son into the world to condemn the world, but in order that the world might be saved through him.

1 John 1:9 ESV / 71 helpful votes

If we confess our sins, he is faithful and just to forgive us our sins and to cleanse us from all unrighteousness.

2 Corinthians 13:14 ESV / 70 helpful votes

The grace of the Lord Jesus Christ and the love of God and the fellowship of the Holy Spirit be with you all.

John 14:6 ESV / 69 helpful votes

Jesus said to him, “I am the way, and the truth, and the life. No one comes to the Father except through me.

John 3:16 ESV / 69 helpful votes

“For God so loved the world, that he gave his only Son, that whoever believes in him should not perish but have eternal life.

Ephesians 5:25 ESV / 63 helpful votes

Husbands, love your wives, as Christ loved the church and gave himself up for her,

Leviticus 21:21 ESV / 54 helpful votes

No man of the offspring of Aaron the priest who has a blemish shall come near to offer the Lord‘s food offerings; since he has a blemish, he shall not come near to offer the bread of his God.

Leviticus 21:16-24 ESV / 50 helpful votes

And the Lord spoke to Moses, saying, “Speak to Aaron, saying, None of your offspring throughout their generations who has a blemish may approach to offer the bread of his God. For no one who has a blemish shall draw near, a man blind or lame, or one who has a mutilated face or a limb too long, or a man who has an injured foot or an injured hand, or a hunchback or a dwarf or a man with a defect in his sight or an itching disease or scabs or crushed testicles. …

1 Peter 4:1 ESV / 46 helpful votes

Since therefore Christ suffered in the flesh, arm yourselves with the same way of thinking, for whoever has suffered in the flesh has ceased from sin,

Luke 5:1-39 ESV / 44 helpful votes

On one occasion, while the crowd was pressing in on him to hear the word of God, he was standing by the lake of Gennesaret, and he saw two boats by the lake, but the fishermen had gone out of them and were washing their nets. Getting into one of the boats, which was Simon’s, he asked him to put out a little from the land. And he sat down and taught the people from the boat. And when he had finished speaking, he said to Simon, “Put out into the deep and let down your nets for a catch.” And Simon answered, “Master, we toiled all night and took nothing! But at your word I will let down the nets.” …

Psalm 23:1-6 ESV / 41 helpful votes

A Psalm of David. The Lord is my shepherd; I shall not want. He makes me lie down in green pastures. He leads me beside still waters. He restores my soul. He leads me in paths of righteousness for his name’s sake. Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me. You prepare a table before me in the presence of my enemies; you anoint my head with oil; my cup overflows. …

1 Corinthians 6:19-20 ESV / 34 helpful votes

Or do you not know that your body is a temple of the Holy Spirit within you, whom you have from God? You are not your own, for you were bought with a price. So glorify God in your body.

Romans 8:16 ESV / 28 helpful votes

The Spirit himself bears witness with our spirit that we are children of God,

Leviticus 21:23 ESV / 28 helpful votes

But he shall not go through the veil or approach the altar, because he has a blemish, that he may not profane my sanctuaries, for I am the Lordwho sanctifies them.”

Hebrews 12:12-14 ESV / 26 helpful votes

Therefore lift your drooping hands and strengthen your weak knees, and make straight paths for your feet, so that what is lame may not be put out of joint but rather be healed. Strive for peace with everyone, and for the holiness without which no one will see the Lord.

Matthew 18:10 ESV / 23 helpful votes

“See that you do not despise one of these little ones. For I tell you that in heaven their angels always see the face of my Father who is in heaven.

John 16:32-33 ESV / 20 helpful votes

Behold, the hour is coming, indeed it has come, when you will be scattered, each to his own home, and will leave me alone. Yet I am not alone, for the Father is with me. I have said these things to you, that in me you may have peace. In the world you will have tribulation. But take heart; I have overcome the world.”

Isaiah 42:3 ESV / 20 helpful votes

A bruised reed he will not break, and a faintly burning wick he will not quench; he will faithfully bring forth justice.

James 5:10-15 ESV / 19 helpful votes

As an example of suffering and patience, brothers, take the prophets who spoke in the name of the Lord. Behold, we consider those blessed who remained steadfast. You have heard of the steadfastness of Job, and you have seen the purpose of the Lord, how the Lord is compassionate and merciful. But above all, my brothers, do not swear, either by heaven or by earth or by any other oath, but let your “yes” be yes and your “no” be no, so that you may not fall under condemnation. Is anyone among you suffering? Let him pray. Is anyone cheerful? Let him sing praise. Is anyone among you sick? Let him call for the elders of the church, and let them pray over him, anointing him with oil in the name of the Lord. …

Mark 8:22-35 ESV / 18 helpful votes

And they came to Bethsaida. And some people brought to him a blind man and begged him to touch him. And he took the blind man by the hand and led him out of the village, and when he had spit on his eyes and laid his hands on him, he asked him, “Do you see anything?” And he looked up and said, “I see men, but they look like trees, walking.” Then Jesus laid his hands on his eyes again; and he opened his eyes, his sight was restored, and he saw everything clearly. And he sent him to his home, saying, “Do not even enter the village.” …

 

Traumatic Brain Injury Resource Guide – Types of Brain Injury

Source: Traumatic Brain Injury Resource Guide – Types of Brain Injury

Types of Brain Injury

There are two broad classifications of traumatic brain injury: open and closed. Open head injury occurs when the skull is penetrated by a sharp instrument (such as a knife) or an explosive missile (such as a bullet or shell fragments). In penetrating head injuries, tissue damage will be found at the point of penetration and surrounding the path of the intruding object. Consequences of an open head injury can be swelling, lacerations from skull fragments, and vulnerability to infection and further injury.

Closed head injury is primarily caused by a blunt impact or blow to the head without penetrating the skull. The most common form of brain damage is caused by closed head injury. Consequences of a closed head injury can be swelling, increased intercranial pressure, and tissue compression.

More specific types of brain injury are:

laceration or tearing of the brain, usually from a skull fracture or gunshot wound, results in rupture of large blood vessels with bleeding into the brain and subarachnoid space. This can result in hematomas, edema and increased intercranial pressure. Objects (e.g. bullets) can also ricochet within the skull, which can widen the area of damage.

coup-contrecoup injury describes contusions that are both at the site of the impact and on the complete opposite side of the brain.

contusion is a visible bruise (bleeding) on the brain.

Hematomas are a swelling or mass of blood in the brain caused by a break in a blood vessel. An epidural hematoma is above the dura mater, a subdural hematoma beneath the dura, subarachnoid between the arachnoid membrane and the pia mater, and intracerebral a hemmorrhage localized to one area of the brain.

Diffuse Axonal Injury (DAI) is caused by strong rotational forces of the head, such as with a car accident. The unmoving brain lags behind the movement of the skull, causing brain structures to tear. There is extensive tearing of nerve tissue throughout the brain which can disrupt the brain’s regular communication and chemical processes. This “chemical cascade” can cause additional injury.

Concussions are caused when the brain receives trauma from an impact, sudden momentum or movement change. The blood vessels in the brain may stretch and cranial nerves may be damaged. A person may or may not experience a brief loss of consciousness (not exceeding 20 minutes). They may remain conscious, but feel “dazed”

Anoxic brain injury occurs when the brain does not receive any oxygen. Cells in the brain need oxygen to survive and function.

Hypoxic brain injury results when the brain receives some, but not enough oxygen.

TBI Ten Years Later: A Mother’s Story Continues | BrainLine

Ten years is a long time, but the shock and sadness of a child’s TBI never goes away.

Source: TBI Ten Years Later: A Mother’s Story Continues | BrainLine

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TBI Ten Years Later: A Mother’s Story Continues

TBI Ten Years Later: A Mother's Story Continues

It has been almost ten years since traumatic brain injury (TBI) crashed into our lives, changing our family forever. People always ask, “How is your son Paul doing now? How are you, your husband, the other kids? How has your family survived?” I usually give my polite, standard answer: “Oh…thanks for asking, we’re all doing fine. And you?” But the reality is — unless you have experienced the loss, the heartache, and the ripple effects that brain injury can inflict — you cannot possibly understand the magnitude and the seriousness of the life-altering implications. The long-term impact that TBI imposes on the injured person, family members, and friends is unthinkable. The nightmare of TBI relives itself day after day, month after month, and year after year. Grief and sadness persist even ten years later, despite all the miraculous gains my son has made since his initial injury.

After the shock of Paul’s accident and TBI diagnosis “• when I understood the reality and severity of his injuries, knowing that they were likely to include lingering deficits and handicaps “• I wanted to bury my head under a pillow and slip under a thick blanket of denial. But to survive, I realized the necessity of being strong-willed and maintaining an attitude of never giving up. Everyone — myself and my family as well as the doctors, nurses, therapists, and even Paul himself —would have to draw on inner resources we had not known existed.

In the early stages of Paul’s injury, he was immobile and essentially in a vegetative state. We suddenly had to become his eyes, his ears, his voice. We needed to advocate for his every need. My husband and I fought to find the best medical, financial, educational, legal, vocational, and rehabilitation services available. We never stopped advocating for our son’s needs or for those of our family. As days turned into months, and months turned into years, I do not know where our energy or drive came from to venture into areas we knew nothing about. But there was no way we would stand idle without trying to help our son possibly regain even some of what he had lost after being struck by a car while riding his bike at age 13.

We came to realize that the outcome of each TBI, like each person, is unique. A person’s outcome depends on the specific circumstances and severity of the injury, immediate and long-term medical care, rehabilitation services, and the individual patient and family. We also learned that many people with TBI plateau relatively soon after their injury, without making huge gains. Sometimes these injured people and their families are left to cope with so much beyond their control: cognitive, memory, behavioral, physical, emotional, and social changes … the medical bills and never-ending insurance claims … the everyday demands of cooking, laundry, cleaning, yard work, going to the office, maintaining a marriage, and keeping other children’s studies and activities moving forward.

Rehabilitation

After many months in ICU, our son was stabilized, but the urgency continued. Getting him into a rehabilitation hospital was key to learning how to speak, to walk, and to perform basic tasks again. We knew Paul’s recovery was questionable and that he could possibly remain bedridden, wheelchair-bound, or cognitively impaired. But the months of grueling shifts of speech, occupational, and physical therapies began to pay off. Paul fought back like a champion! We began to see small gains — he blinked his eyelids, lifted a finger, uttered a word. Seeing the healing begin was powerful and moving. Yet Paul still had a long way to go.

Reintegrating Home

Anticipating Paul’s release from the rehabilitation hospital, we were faced with a new set of questions. What would we do next? Paul was still using a wheelchair and a walker. He was still struggling with memory and speech loss. He still needed assistance with everyday activities and self-care. I worried about how we were going to cope. When my husband or I were home, we’d tried to focus on the needs and cares of our other children, while managing the daily chores that made the household run smoothly. When we’d been at the rehab hospital, our only focus had been to take care of Paul. I was not sure how, or if, it would even be possible, to mesh these two demanding worlds into one.

I knew our family would be under more stress and would have to surpass the extraordinary level of support and help we were already extending to each another. We had to think about all aspects of home nursing and medical care, to obtain and install all assistive and adaptive equipment, and to prepare Paul’s siblings for the homecoming of their “new” brother. We suggested ways for the other kids to help, and we gave them permission to back off if need be. The caregiving was both never ending and exhausting. We had to recognize our own limitations, shed any guilt, and ask for help from our community, friends, and family.

Outpatient Therapy

Continuingoutpatient therapies was important to help Paul regain more movement and thinking capabilities. We logged many miles driving to and from his new outpatient facility, 20 minutes from home. I was shocked at how many injured or maimed people came and went every half hour. Missing legs and arms could have been one of the criteria for entry. And the therapies went on and on and on….

Reintegrating Back to School

We tried relentlessly to set up home tutoring through our town’s special education department to get Paul the mental stimulation he needed to continue recovery. But after investigating special needs schools and other facilities, we made the hard choice to try to reintegrate Paul into the public school system. We recognized the challenge because specific educational processes and styles used in teaching TBI students are very different from those used in teaching individuals who have permanent birth defects. Paul needed an Individual Educational Plan (IEP) geared toward his specific needs. He underwent a neurophysiology examination, which is concerned with the relationships between brain function and behavior and considers how injury may affect learning, communication, planning, organization, and relationships with others. The neurophysiologist evaluated Paul’s cognitive abilities and deficits and provided teachers with suggestions and methods to stimulate and improve new learning. In other words, the evaluation was used to help develop Paul’s IEP. When Paul returned to school, the break from constant rehabilitation allowed our days to regain some degree of normalcy.

Friends and Family Relationships

All of our lives had changed dramatically since Paul’s accident. I know Paul felt the absence of the phone not ringing, and of his friends no longer coming by to hang out. With the time that had passed, most of his friends had distanced themselves. Some were just typical self-centered teenagers, but others could not relate to the slowness with which Paul now talked and walked, and could not comprehend the differences, though slight, in Paul’s personality. To his peers, Paul appeared childlike, odd, and different. To adults, Paul was an inspiration of hope. His subtle humor made everyone smile.

Over time, my husband and I and our other seven children began to realize two things: the person we once knew might never be returned to us, and recovery would be lifelong. Because all of our lives had been put on hold for so long while we coped with such staggering changes, we started to nurture all of our family relationships. We gave permission to each other to start moving forward, to begin to go back to our daily routines, including even recreational activities.

Getting a Job

As time went on, Paul’s mobility and his physical, mental, and cognitive abilities improved. He no longer needed the special school accommodations that we had fought for so desperately: the personal aide, the small classroom atmosphere, a personal computer, scheduled rest periods, books on tape, and so forth. At Paul’s high school graduation, he walked to the podium to receive his diploma — no wheelchair, no walker but a clear understanding of all that he had accomplished. But leaving school also meant leaving the only support system we knew. The fight would continue, and we would have to again advocate for Paul to help him find employment and become more independent. Working with our state’s rehabilitation office, Paul gained employment at a local retail store where he started as a greeter, quickly moving up to sales clerk and then cashier.

Higher Education

Paul is not the same person he was before the crash. He walks off-balance, though to his family, it is a blessing he walks at all. His voice is slow and monotone. Yet, we are extremely grateful that he can speak. Cognitively, he may be slightly slower to process information, to form a thought, or to respond to a question. But the reality of his ability to react with maturity, humor, and intelligence is beyond our belief. The tremors and shakes that affect the left side of his body make it hard for him to do almost everything. But his persistence and perseverance are mind-boggling. Ten years after Paul sustained a TBI, he volunteered at the hospital where his life was saved. He speaks at rehab hospitals, medical facilities, and preventive organizations talking about TBI and the importance of wearing a bike helmet. Remarkably, he is in a higher education program, attending Lesley University (The Threshold Program) in Boston, where he is living independently, surrounded by other young adults.

Ten Years Later

Despite all the miraculous gains my son has made over the years, my heart often remains heavy. When I look into my husband’s or my children’s eyes, I can still see the lingering fear, the permanent scars.

To deal with the “new” person who emerges after brain injury, families must mourn the loss of the “old” one who is gone … and then move on to embrace life’s challenges and changes and to love unconditionally. The fragility and meaning of life have indeed become more real as my family has found new qualities, insights, and purpose to our days that would not have surfaced if the injury had not happened. And even ten years later, the sound of an ambulance or the sight of a hospital can evoke tears as we relive and experience flashbacks to that unthinkable day of the accident.

Ten years later, my heart also remains heavy as I think of other families who will receive the unthinkable news that one of their loved ones has sustained a life-altering injury. I understand all too well the grief and uphill battles they are sure to encounter. I also pray that these families will reach out to get help and resources, to have the strength and will to advocate, to never give up … and to keep hope alive.

Written exclusively for BrainLine by Dixie Fremont-Smith Coskie. © Dixie Fremont-Smith Coskie, 2010. www.dixiecoskie.com.

Posted on BrainLine February 28, 2011

Comments

I feel for you in this story. Many years ago I had an injury where I lost all my memory pre accident. I was 30 at the time.
There was no rehab at the time and luckily, my brain went into making it work.
I’m currently writing an autobiography about what it is like.
How to go from waking up with no memory of 30 years to how with a lot of work ended up where I am now
davidwaters.site/autobiography
All the best in the future and hope life gets a bit better.
It is as hard been the sufferer as it is for the family concerned.

Thank you for sharing your sons story .. Many Blessings Of Love For Him , You and The Rest of Your Family.
My grandson Hunter was in the back seat of a car that was struck by a tractor and trailer when he was 1 year old , he is 5 now . My son and daughter in law are trying very hard to make his life the best they can . He doesn’t have use of his right side , his speech is very little.. but he smiles and for this I’m so very grateful . If you have any suggestions please write me .. my email address is
Skylark127@gmail.co

TBI: What is Traumatic Brain Injury | Brain Injury Information | Brain Injury Treatment

Brain Injury Information, what traumatic brain injury (TBI) is and brain injury treatment information, options and resources.

Source: TBI: What is Traumatic Brain Injury | Brain Injury Information | Brain Injury Treatment

What is Traumatic Brain Injury?

Traumatic brain injury, often referred to as TBI, is most often an acute event similar to other injuries. That is where the similarity between traumatic brain injury and other injuries ends. One moment the person is normal and the next moment life has abruptly changed.

In most other aspects, a traumatic brain injury is very different. Since our brain defines who we are, the consequences of a brain injury can affect all aspects of our lives, including our personality. A brain injury is different from a broken limb or punctured lung. An injury in these areas limit the use of a specific part of your body, but your personality and mental abilities remain unchanged. Most often, these body structures heal and regain their previous function.

Brain injuries do not heal like other injuries. Recovery is a functional recovery, based on mechanisms that remain uncertain. No two brain injuries are alike and the consequence of two similar injuries may be very different. Symptoms may appear right away or may not be present for days or weeks after the injury.

One of the consequences of brain injury is that the person often does not realize that a brain injury has occurred.

This section explains:

How lupus affects the nervous system

Learn what affect lupus can have on the nervous system and brain.

Source: How lupus affects the nervous system

How lupus affects the nervous system

Lupus Foundation of America

Resource Content

Lupus is an autoimmune disease that can affect almost any part of your body, including your jointsskinkidneysheartlungs, or blood. Lupus can also affect the nervous system and brain. There are several terms doctors use to describe this: neuropsychiatric lupus (NPSLE), neurocognitive dysfunction, or central nervous system lupus (CNS lupus).

The nervous system has three parts, any of which may be affected by lupus:
  • The central nervous system (CNS)—The brain and spinal cord.
  • The peripheral nervous system (PNS)—The network of nerves that connects the brain and spinal cord to the rest of the body, and gives skin and muscles the signals needed for sensation and movement.
  • The autonomic nervous system (ANS)—Allows communication between spinal and peripheral nerves and the brain and internal organs, and controls functions like breathing, blood flow, and heart rate.

People with lupus can experience a number of complications when their nervous system is affected. The symptoms may come on suddenly or may come and go, but they will vary depending upon the location and extent of the tissue injury. These symptoms also can be present in other diseases, so diagnosing lupus-related nervous system disorders is often difficult.

Neurologists are physicians who specialize in the nervous system. They may rely on a number of diagnostic tools to determine whether lupus is involved in cognitive problems:

  • X-rays
  • Brain scans (magnetic resonance imaging (MRI) and computed tomography (CT)
  • Electroencephalograms (to capture the electrical pattern of brain activity)
  • Spinal tap (to examine fluid in the spinal column)

Behavioral and cognitive tests may also be done to find out if your memory or other mental abilities have been affected.

Depending on the symptoms, a variety of medications are available to treat lupus-related nervous system disorders, including non-steroidal anti-inflammatory drugs, antimalarials, and steroids. Your response to treatment may be rapid or gradual over several months.

For many people with lupus, nervous system involvement is completely reversible.

Central Nervous System (CNS)

When lupus affects your central nervous system, many symptoms may occur, including:
  • Headaches
  • Confusion
  • Fatigue
  • Depression
  • Seizures
  • Strokes
  • Vision problems
  • Mood swings
  • Difficulty concentrating

Lupus fog or cognitive dysfunction

As many as half of all people with lupus describe feelings of confusion, fatigue, memory loss, and difficulty expressing their thoughts. This collection of symptoms is termed cognitive dysfunction, although many people with lupus call it “lupus fog.” Cognitive dysfunction most often affects people with mild to moderately active lupus. The causes of these symptoms, and the reasons the symptoms tend to come and go, are unknown. Living with cognitive dysfunction can be very frustrating. However, you can learn to improve your concentration and lessen confusion and memory loss with a variety of coping skills, including puzzles, games, biofeedback, using a daily appointment calendar, and balancing daily activities to reduce stress.

Lupus fog can be frustrating but there are a variety of coping skills that can help you learn to improve your concentration and lessen confusion.

Lupus headache

Compared with the general population, people with lupus may be twice as likely to experience migraine-like lupus headaches, commonly known as lupus headaches. The features of lupus headaches are similar to migraines and may be seen more often in people who also have Raynaud’s phenomenon. However, headaches can also be caused by vasculitis, a symptom of active lupus due to inflammation of the blood vessels. If you are experiencing headaches that are not improved by an over-the-counter headache medication, be sure to tell your doctor.

Medication side effects

Medications used to treat lupus can cause side effects that are similar to the symptoms of CNS lupus. If you have symptoms of CNS lupus you should consult a neurologist who can determine which symptoms are side effects of medication and which are due to lupus. The drugs most known for causing symptoms like those of CNS lupus are:

  • Non-steroidal anti-inflammatory drugs (NSAIDs) – May cause headache, dizziness, confusion, and in rare instances, meningitis-like symptoms
  • Antimalarials – Very high doses (not usually given for lupus) may cause manic behavior, seizures, psychosis
  • Corticosteroids – May cause agitation, confusion, mood swings, psychosis, depression
  • Anti-hypertensive medications – May cause depression or loss of sex drive

A serious form of lupus called CNS vasculitis may occur when there is inflammation of the blood vessels of the brain. Characterized by high fevers, seizures, psychosis, and meningitis-like stiffness of the neck, CNS vasculitis is the most dangerous form of lupus involving the nervous system and usually requires hospitalization and high doses of corticosteroids to suppress the inflammation.

Peripheral Nervous System (PNS)

The nerves of the peripheral nervous system control motor responses and sensation, so symptoms of numbness or tingling, or inability to move a part of your body, may be the result of lupus affecting these nerves. Known as peripheral neuropathies, symptoms of PNS nerve damage are caused by inflammation or compression of the nerves due to swelling in the tissue around them.

The types of symptoms you might experience include:
  • Vision problems
  • Facial pain
  • Ringing in the ears
  • Dizziness
  • Drooping of an eyelid
  • Carpel tunnel syndrome

Autonomic Nervous System (ANS)

The autonomic nervous system regulates many of the body’s functions that happen almost automatically: heart rate, blood pressure, feeling hot or cold, bladder and bowel functions, release of adrenaline, breathing, sweating, and muscle movement. Lupus can cause these nerve signals to be overactive, which can lead to a wide range of symptoms:

  • Numbness
  • Burning
  • Tingling
  • Mental confusion
  • Headaches
  • Gastrointestinal problems such as nausea, vomiting, constipation, or diarrhea

Raynaud’s phenomenon is a condition of ANS involvement caused by inflammation of nerves or blood vessels. Blood vessels in the hands and feet go into spasm and restrict blood flow, usually as a reaction to cold temperatures, with the tips of the fingers or toes turning red, white, or blue. Raynaud’s can also cause pain, numbness, or tingling in fingers and/or toes. People who have Raynaud’s phenomenon are advised to avoid cold conditions when possible, and may have to wear gloves or mittens when in air-conditioned surroundings.

Livedo reticularis and palmar erythema are two other skin disorders that may affect you if you have autonomic nerve damage. Both of these conditions can cause a bluish, lacelike mottling under your skin, especially on your legs, giving your skin a “fishnet” look

 

Severe tissue trauma triggers the autoimmune state systemic lupus erythematosus in the MRL/++ lupus-prone mouse. – PubMed – NCBI

Lupus. 2009 Apr;18(4):318-31. doi: 10.1177/0961203308097479. Research Support, U.S. Gov’t, Non-P.H.S.

Source: Severe tissue trauma triggers the autoimmune state systemic lupus erythematosus in the MRL/++ lupus-prone mouse. – PubMed – NCBI

Severe tissue trauma triggers the autoimmune state systemic lupus erythematosus in the MRL/++ lupus-prone mouse.

Abstract

Tissue damage associated with a severe injury can result in profound inflammatory responses that may trigger autoimmune development in lupus-prone individuals. In this study, we investigated the role of a large full-thickness cutaneous burn injury on the early onset of autoimmune disease in lupus-prone MRL/++ mice. MRL/++ mice (chronic model) exhibit autoimmune symptoms at >70 weeks of age, whereas MRL/-Fas(lpr) mice (acute model) develop autoimmune disease in 17-22 weeks due to a lymphoproliferative mutation. Autoimmune disease developed in MRL/++ mice (4-15 weeks post injury) is manifested by skin lesions, vasculitis, epidermal ulcers, cellular infiltration, splenomegaly, lymphadenopathy, hypergammaglobulinemia, elevated autoantibodies and renal pathologies including proteinuria, glomerulonephritis and immune complex deposition; complications that contribute to reduced survival. Transcription studies of wound margin tissue show a correlation between the pathogenic effects of dysregulated IL-1beta, IL-6, TNF-alpha and PGE(2) synthesis during early wound healing and early onset of autoimmune disease. Interestingly, MRL/++ mice with healed wounds (30-40 days post burn) strongly rejected skin isografts. Conversely, skin isografts transplanted onto naive age-matched MRL/++ littermates achieved long-term survival. Collectively, these findings suggest that traumatic injury exacerbates inflammatory skin disease and severe multi-organ pathogenesis in lupus-prone mice.

PMID:
19276300
DOI:
10.1177/0961203308097479
[Indexed for MEDLINE]
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(100) Can Even Minor Head Blows Cause Autoimmune Disease Later in Life? – YouTube

Can minor blows to the head, which fall short of concussion, lead to autoimmune disease later? It’s certainly a plausible theory says Allegheny General Hospi…

Systemic Lupus Erythematosus Complications – Systemic Lupus Erythematosus Health Information – NY Times Health

Free articles and multimedia from The NY Times, including information on symptoms, diagnosis, treatments, tests, and surgical procedures, as well as current news and interviews with leading experts.

Systemic Lupus Erythematosus

Complications

Systemic lupus erythematosus (SLE) can cause systemic complications throughout the body.

COMPLICATIONS OF THE BLOOD

Almost 85% of patients with SLE experience problems associated with abnormalities in the blood.

Anemia. About half of patients with SLE are anemic. Causes include:

  • Iron deficiencies resulting from excessive menstruation
  • Iron deficiencies from gastro-intestinal bleeding caused by some of the treatments
  • A specific anemia called hemolytic anemia, which destroys red blood cells
  • Anemia of chronic disease

Hemolytic anemia can occur with very high levels of the anticardiolipin antibody. It can be chronic or develop suddenly and be severely (acute).

Antiphospholipid Syndrome. Between 34 – 42% of patients with SLE have antiphospholipid syndrome (APS). This is a specific set of conditions related to the presence of autoantibodies called lupus anticoagulant and anticardiolipin. These autoantibodies react against fatty molecules called phospholipids, and so are called antiphospholipids. Their actions have complex effects that include causing narrowing and abnormalities of blood vessels.

  • Patients who have APS have a very incidence of blood clots, which most often occur in the deep veins in the legs. Blood clotting, in turn, puts patients at higher risk for stroke and pulmonary embolism (clots in the lungs).

  • The effects on blood vessels have also been associated with confusion, headaches, and seizures. Leg ulcers can also develop.
  • Patients with APS who become pregnant have a high incidence of pregnancy loss, especially in the late term.

Not all patients with APS carry both of the autoantibodies, and they can also wax and wane and so have varying effects. APS also occurs withoutlupus in about half of patients with the syndrome.

Thrombocytopenia. In thrombocytopenia, antibodies attack and destroy blood platelets. In such cases, blood clotting is impaired, which causes bruising and bleeding from the skin, nose, gums, or intestines. (This condition can also occur in APS, but it is not considered to be one of the standard features of the syndrome.)

Neutropenia. Neutropenia is a drop in the number of white blood cells. Patients with SLE often neutropenia, but the condition is usually harmless unless the reductions are so severe that they leave the patient vulnerable to infections.

Acute Lupus Hemophagocyte Syndrome. A rare blood complication of SLE that occurs primarily in Asians is called acute lupus hemophagocytic syndrome. It is generally of short duration and characterized by fever and a sudden drop in blood cells and platelets.

Lymphomas. Patients with SLE and other autoimmune disorders have a greater risk for developing lymph system cancers such as Hodgkin’s disease and non-Hodgkin’s lymphoma (NHL).

HEART AND CIRCULATION COMPLICATIONS

Heart disease is a primary cause of death in lupus patients. The immune response in SLE can cause chronic inflammation and other damaging effects that can cause significant injury to the arteries and tissues associated with the circulation and the heart. In addition, SLE treatments (particularly corticosteroids) affect cholesterol, weight, and other factors that can also affect the heart.

Patients with SLE, have a higher risk for developing the following conditions, which put them at risk for heart attack or stroke:

  • Atherosclerosis, or plaque buildup in the arteries
  • Increased stiffness in the arteries
  • Unhealthy cholesterol and lipid (fatty molecules) levels
  • High blood pressure, most likely because of kidney injury and corticosteroid treatments
  • Heart failure
  • Pericarditis, an inflammation of the tissue surrounding the heart
  • Myocarditis, an inflammation of the heart muscle itself (rare)
  • Abnormalities in the valves of the heart (rare)
  • Blood clots

The risk for cardiovascular disease, heart attack, and stroke is much higher than average in younger women with SLE. The risks decline as such women age.

LUNG COMPLICATIONS

SLE affects the lungs in about 60% of patients:

  • Inflammation of the membrane lining the lung (pleurisy) is the most common problem, which can cause shortness of breath and coughing.
  • In some cases, fluid accumulates, a condition called pleural effusion.
  • Inflammation of the lung tissue itself is called lupus pneumonitis. It can be caused by infections or by the SLE inflammatory process. Symptoms are the same in both cases: fever, chest pain, labored breathing, and coughing. Rarely, lupus pneumonitis becomes chronic and causes scarring in the lungs, which reduces their ability to deliver oxygen to the blood.
  • A very serious and rare condition called pulmonary hypertensionoccurs when high pressure develops as a result of damage to the blood vessels of the lungs.

KIDNEY COMPLICATIONS (LUPUS NEPHRITIS)

The kidneys are a crucial battleground in SLE because it is here that the debris left over from the immune attacks is most likely to be deposited. Also, the immune response can also attack different parts of the kidney causing damage. About 50% of patients with SLE exhibit inflammation of the kidneys (called lupus nephritis).This condition occurs in different forms and can vary from mild to severe. Poor kidney function and kidney failure may result from this damage.

Serious complications occur eventually in about 30% of patients. If kidney injury develops, it almost always occurs within 10 years of the onset of SLE, rarely after that.

CENTRAL NERVOUS SYSTEM COMPLICATIONS

Nearly all patients with SLE report some symptoms relating to problems that occur in the central nervous system (CNS), which includes the spinal cord and the brain. CNS involvement is more likely to occur in the first year, usually during flare-ups in other organs.

Symptoms vary widely and overlap with psychiatric or neurologic disorders. They may also be caused by of some medications used for SLE. Central nervous system symptoms are usually mild, but there is little effective treatment available for them. CNS symptoms get worse as the disease progresses.

The most serious CNS disorder is inflammation of the blood vessels in the brain (vasculitis), which occurs in 10% of patients with SLE. Fever, seizures, psychosis, and even coma can occur. Other CNS side effects include:

  • Irritability
  • Emotional disorders (anxiety, depression)
  • Mild impairment of concentration and memory
  • Migraine and tension headaches
  • Problems with the reflex systems, sensation, vision, hearing, and motor control

INFECTIONS

Infections are a common complication and a major cause of death in all stages of SLE. The immune system is indeed overactive in SLE, but it is also abnormal and reduces the ability to fight infections. Patients are not only prone to the ordinary streptococcal and staphylococcal infections, but they are also susceptible to fungal and parasitic infections (called opportunistic infections), which are common in people with weakened immune systems. They also face an increased risk for urinary tract, herpes, salmonella, and yeast infections. Corticosteroid and immunosuppressants, treatments used for SLE, also increase the risk for infections, thereby compounding the problem.

GASTROINTESTINAL COMPLICATIONS

About 45% of patients with SLE suffer gastrointestinal problems, including nausea, weight loss, mild abdominal pain, and diarrhea. Severe inflammation of the intestinal tract occurs in less than 5% of patients and causes acute cramping, vomiting, diarrhea, and, rarely, intestinal perforation, which can be life-threatening. Fluid retention and swelling can cause intestinal obstruction, which is much less serious but causes the same type of severe pain. Inflammation of the pancreas can be caused by the disease and by corticosteroid therapy.

JOINT, MUSCLE, AND BONE COMPLICATIONS

Arthritis caused by SLE almost never leads to destruction or deformity of joints. The inflammatory process can, however, damage muscles and cause weakness. Patients with SLE also commonly experience reductions in bone mass density (osteoporosis) and have a higher risk for fractures, whether or not they are taking corticosteroids (which can increase the risk for osteoporosis). Women who have SLE should have regular bone mineral density scans to monitor bone health.

EYE COMPLICATIONS

Inflamed blood vessels in the eye can reduce blood supply to the retina, resulting in degeneration of nerve cells and a risk of hemorrhage in the retina. The most common symptoms are cotton-wool-like spots on the retina. In about 5% of patients sudden temporary blindness may occur.

SOCIOECONOMIC CONSEQUENCES

In one study, 40% of patients with SLE quit work within 4 years of diagnosis, and many had to modify their work conditions. Significant factors that predicted job loss included high physical demands from the work itself, a more severe condition at the time of diagnosis, and lower educational levels. People with lower income jobs were at particular risk for leaving them.

PREGNANCY AND SYSTEMIC LUPUS ERYTHEMATOSUS

Women with lupus who conceive face high-risk pregnancies that increase the risks for themselves and their babies. It is important for women to understand the potential complications and plan accordingly. The most important advice is to avoid becoming pregnant when lupus is active.

Research suggests that the following factors predict a successful pregnancy:

  • Disease state at time of conception. Doctors strongly recommend that women wait to conceive until their disease state has been inactive for at least 6 months.
  • Kidney (renal) function. Women should make sure that their kidney function is evaluated prior to conception. Poor kidney function can worsen high blood pressure and cause excess protein in the urine. These complications increase the risk for preeclampsia and miscarriage.
  • Lupus-related antibodies. Antiphospholipid and anticardiolipin antibodies can increase the risks for preeclampsia, miscarriage, and stillbirths. Anti-SSA and anti-SSB antibodies can increase the risk for neonatal lupus erythematosus, a condition that can cause skin rash and liver and heart damage to the newborn baby. Levels of these antibodies should be tested at the start of pregnancy. Certain medications (aspirin, heparin) and tests (fetal heart monitoring) may be needed to ensure a safe pregnancy.
  • Medication use during pregnancy. Women with active disease may need to take low-dose corticosteroids, but women with inactive disease should avoid these drugs. Steroids appear to pose a low risk for birth defects, but can increase a pregnant woman’s risks for gestational diabetes, high blood pressure, infection, and osteoporosis. For patients who need immunosuppressive therapy, azathioprine (Imuran) is an option. Methotrexate (Rheumatrex) and cyclophosphamide (Cytoxan) should not be taken during pregnancy.

Pregnancy Risks

Women with lupus are 20 times more likely to die during pregnancy than women without the disease. The risk for maternal death is due to the following serious conditions that can develop during pregnancy:

  • Miscarriages. About 25% of lupus pregnancies result in miscarriage. The risk is highest for patients with antiphospholipid antibodies, active kidney disease, or high blood pressure.
  • Blood clots. Women with lupus have a 6 times greater risk for developing deep vein thrombosis (blood clots) than women without the disease.
  • Clotting complications. Low blood platelet count and anemia are also risks. Women with lupus are 3 times more likely to need a transfusion during pregnancy than women without lupus.
  • Infections. Blood infections (sepsis), pneumonia, and urinary tract infections are more common in pregnant women with lupus.
  • Preeclampsia. Women with lupus are three times more likely than healthy women to develop preeclampsia (pregnancy-related high blood pressure), which can be potentially life threatening.
  • Birth Complications. Women with SLE have an increased risk of having a pre-term birth, stillbirth, or Caesarean section.

Despite these obstacles, many women with lupus have healthy pregnancies and deliver healthy babies. To increase the odds of a successful pregnancy, it is important for women to plan carefully before becoming pregnant. Be sure to find knowledgeable doctors with whom you can communicate and trust. Pregnant women with lupus should try to assemble an interdisciplinary health care team that includes a rheumatologist, high-risk obstetrician, and (for patients with kidney disease) a nephrologist.

Lupus Triggered By Head Injury – Doctor insights on HealthTap

Doctors help you with trusted information about Head Trauma in Head Injury: Dr. Khanna on lupus triggered by head injury: Head injuries can cause seizures if there is structural damage.

Source: Lupus Triggered By Head Injury – Doctor ins

Dr. John Rowlett

doctors agreed:
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Dr. James Dukelow

doctor shared a insight

Injuries (Definition)

An injury, of any severity, is a condition in which a person has damage to any part of his body. Examples of major injuries include gunshot wounds, knife wounds, large burns, severed …Read more

Dr. Axel Martinez-Irizarry

doctors agreed:
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What to do if emergency head injury!?

What to do if emergency head injury!?

Emergency Room: If you consider the injury to be severe, lost consciousness or have a severe headache, go to the Emergency Room where they can evaluate you and depending on the magnitude of the injury and symptoms do a Head CT scan…Read more

See 1 more doctor answer

3
Husband suffered head injury, what to do?

Husband suffered head injury, what to do?

Head injury: Treatment is based on the severity of the injury – with a skull fracture, significant loss of consciousness, nausea and vomiting and other findings the patient would need an extensive inpatient workup. Head injury without loss of …Read more

See 1 more doctor answer

Dr. Thomas Birdas

doctors agreed:

 

4
How is head injury detected by temperature?

How is head injury detected by temperature?

It’s not: That would not help at all in the diagnosis of head injury…Read more

See 1 more doctor answer

Dr. Samuel Mandell

doctor agreed:
5
Could a head injury make someone feel sick?

Could a head injury make someone feel sick?

Yes: Nausea and vomiting can be caused by head injury and is generally a sign of more serious head trauma requiring medical evaluation. …Read more

Dr. Yash Khanna

doctors agreed:

 

6
What prognosis can we expect for a head injury?

What prognosis can we expect for a head injury?

Prognosis Head INJUR: Prognosis of any headinjury dependant on the extent of the injury. In children with uncomplicated minor head injuries the risk of intracranial bleeding over the next year is rare2 cases in million the incidence of head injury is …Read more

Dr. Jefferson Chen

doctors agreed:

 

7
How can I keep someone with a head injury calm?

How can I keep someone with a head injury calm?

Medications: Frequently when a patient with a traumatic brain injury recovers he/she goes through different stages. Where he starts depends on the severity of the injury. The patients may have agitationand confusion as they improve. This is …Read more

Dr. Eric Weisman

doctor agreed:
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What are the signs of head injury with a child?

What are the signs of head injury with a child?

Many: Crankiness, sleepinessagitation, change in appetite, confusion, lapses, seizures can occur. Any change from the norm should prompt medical attention. …Read more

Dr. Justin ORourke

doctors agreed:

 

9
Will a single head injury have lifelong effects?

Will a single head injury have lifelong effects?

Depends on severity.: A moderate or severe head injurycan have lifelong effects, with the greatest amount of recovery happening within the first year after the injury. A mild injury (about 75-80% of tbis) are expected to make a nearly full recovery within 3 …Read more

See 1 more doctor answer

10
Please advise me what to do about a head injury?

Please advise me what to do about a head injury?

Concussion: Minor head injury should not cause symptoms, if you experience any symptoms like, headachedizziness, blurred visionmemory problem, nausea, balance issue, and sleep disturbances this may be because you have concussion …Read more

Dr. Eric Weisman

469 doctors shared insights

Head Trauma (Definition)

Any injury to the face, skull, or brain as a result of blunt force, or penetrating trauma. It can also occur due to rapid …Read more

Dr. Ihab Ibrahim

379 doctors shared insights

A Warning about White Matter Damage | Brain Injury Community

The largest collection of medical and legal information about traumatic brain injury on the web.

Source: A Warning about White Matter Damage | Brain Injury Community

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A Warning about White Matter Damage

I recently gave a lecture at the North American Brain Injury Society (NABIS) speaking about what many perceive as a wide spread problem in our health care system involving TBI. The problem is that most radiologists in the United States have decided they do not want to be involved in TBI cases. Why do I say this and what does it mean? Let me explain:
1. The most common method of brain injury in the world arising from trauma is called Diffuse Axonal Injury (DAI), this occurs when the brain is subjected to rapid acceleration or deceleration though a high speed motor vehicle accident, for example. We now know that DAI can and does occur in the full spectrum of TBI – from mild to severe. However, the fact that DAI occurs in mild to moderate TBI is a fairly recent finding and many radiologist were not trained to know this.
2. Radiologist, like other physicians, are suppose to attempt to identify the illness or cause of illness, through a process known as “differential diagnosis.” This is done by ruling out different possible causes of say an abnormality shown in the brain on MRI, until a proven cause can be found.
3. The problem arises when identifying an abnormality on brain MRI known as “white matter hyperintensities” (WMH). These small white areas on an MRI are what damage due to DAI looks like, but there are numerous other non-traumatic causes for WMH. These include: the aging process (starting at 45 to 50); smoking; high blood pressure; Lymes disease; Lupus; vasculitis; migraines, headaches, some mental disorders; and MS.
4. The problem is that currently a radiologist will identify WMH on an MRI following a patient’s trauma but will describe the findings as “non-specific.” That means that there are many causes for the abnormality – not that there is no abnormality. Sometimes following this statement the radiologist will give a short list of possible causes, most commonly “demyelinating disease” (MS), migraine, or ischemic disease (vascular degeneration). But what they will generally not say is that another possibility is trauma.
5. It is therefore imperative that someone who has suffered a TBI and has ongoing symptoms for more than six months to be certain that the brain MRI is not showing an undiagnosed TBI. How do you do this? Certainly if a person is under the age of 45, and has no history of the above conditions, than trauma should be suspected. A comprehensive blood test can be ordered which can help rule in or rule out certain autoimmune diseases, Lyme disease, Lupus, and other possible causes.
6. It is also important for your treating physician to talk to you about where these WMH’s are in your MRI. Location is vitally important in determining the cause of WMH. If they are described as being located in the “deep white matter” then they are less likely to be caused by trauma than by one of the above conditions. However, if they are located at the gray-white junction, than trauma should be suspected. Brain injury occurs in this region due to the differential indensity between the gray matter (which is like the thick skin of a grapefruit) and the white matter, which are the long fibers that connect different areas of the brain together (the inside of the grapefruit). Because of this differential, when the brain is twisted or shaken the white matter often shows damage close to this area. In fact, a recent study in China of over 700 healthy 60 to 64-year olds showed zero WMH within four millimeters of the gray white junction. We can therefore infer that following a trauma, abnormalities found in this region are due to trauma. Even if 10% of the WMH are in this area, it would be consistent with trauma. Be aware that your treating radiologist and/or lawyer will not be aware of this information.
What can be done? A film can be reread by another radiologist. A better scan of the brain can be obtained. By this I mean an MRI that has a 3.0 teslor magnet instead of a 1.5. an MRI that includes Susceptibility Weighted Imaging (SWI), as well Diffuse Tensor Imaging (DTI). SWI can identify tiny microhemorrhages in the brain which not coincidently, look like WMH. Survivors of severe brain trauma can have hundreds of these microhemorrhages show up on SWI, whereas zero or only a few show up on standard MRI. DTI looks at white matter injury and a description of DTI can be found elsewhere on the website.
The single most important thing in brain injury litigation is objectification of injury. Once there is a picture of damage to the brain, the tables are turned on the insurance company. They can no longer call the victim crazy, a liar, a drug addict so easily. A picture is indeed worth a thousand words.

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Personal Stories & Blogs by People with TBI | BrainLine

Other brain injury survivors have a special wisdom a wisdom gaine,d from unique experiences, priceless to others in similar situations. Here you will find stories of hope and joy, fear and frustration — shared in the hope that others with brain injury will see reflections of their own lives and know they are not alone.

Source: Personal Stories & Blogs by People with TBI | BrainLine

Every Little Thing You Do Hugh Rawlins
July 17, 2017
There are no guarantees, but there are smart choices and strategies that can optimize recovery after TBI. The following is a list I compiled as my answer to the many people in the beginning stages of TBI who have asked about my success over the years. I hope it helps.
David Grant: The Lingering Effects of Brain Injury
August 4, 2017
I can’t believe that I’m coming up on seven years out. As time continues to pass, my perspectives change, and my insight deepens. Sometimes I forget that those close to me still hurt. In the reflection of their inner pain, I see my injury for what it really is.
David A. Grant blogs about life after brain injury

BrainLine is incredibly lucky to collaborate with a group of outstanding bloggers willing to share their ups and downs, insights, and honest moments of both despair and hope.

Adam at Ease

Adam at Ease: A TBI Video Blog by Army Veteran Adam Anicich
Adam Anicich, Army Veteran

Adam, a former Army Sergeant and polytrauma patient, shares his story— along with some practical tips for managing life post-TBI.

David
David A. Grant, TBI Survivor

A bike ride on a fall day in New England turned out to be anything but typical. I never expected to be rushed by ambulance to the nearest trauma center with a traumatic brain injury …

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Lupus is Killing Me – 20+ Positive Thoughts Helps Me Survive | Motivation | SuccessStory

Lupus is a chronic, autoimmune disease that can damage any part of the body (skin, joints, and/ or organ inside the body). Chronic means that the signs and symptoms tend to last longer than six week and often for many years.

Source: Lupus is Killing Me – 20+ Positive Thoughts Helps Me Survive | Motivation | SuccessStory

Lupus is Killing Me, Positive Thoughts Helps Me Survive

Lupus is a chronic, autoimmune disease that can damage any part of the body (skin, joints, and/ or organ inside the body). Chronic means that the signs and symptoms tend to last longer than six week and often for many years. To be honest, I have never knew about this before until 10 years ago I heard one of my friends struggled to live due to Lupus.

1. Professional career

001

Make You a Highly Successful Professional

Let’s name my friend with Erick (37 years old). We had attended the same university studying the same major and we have never met again until now after the graduation ceremony. Everyone knows Erick as a nice and diligent guy.

After college, he begun his professional career in a huge pharmaceutical company for two or three years. He used to share his working experience to all of us, his college friends, through a mailing list. But suddenly he disappeared for couple of times and came back with new stories that we never expected.

2. Be Responsible

002

At first he told us about the nose bleeding that made him inconvenience at work. Then his body became weak and weak over times. While he had to struggle to the disease that he suffered, he was still active work and tried to finish all the task given and was still responsible to his duty.

Fainting was something that often happen to him during the early period. The insurance from his office was almost exceeding the limits but the pain was still continue. We never had an idea about the disease he suffered, until a doctor diagnosed him with Lupus.

3. Committed to Your Goal

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Success Tips To Achieve Your Goals

Had been shocked, of course. Lupus is not kind of an illness that will get over on a few days. As Erick had started to adapt this condition, another complication came up, his sight became lesser and lesser all the time. He was no longer working in any company again but he never surrender to his pain, never.

Loosing his sight doesn’t mean he loose all the world, otherwise, this condition inspired him to invlove actively in a foundation dedicated to blind people. He gave seminar about Lupus, took the initiative in blood donation activities, and held many social/ charity events to gain fund in order to keep the foundation he involves in running. He never stop motivating people; either they’re blind or not, either they’re form a lupus or not.

4. Ask Yourself

004

Maintain That Positive Attitude In Life

Everyday was like a brand new day for him. He learned many things new to help him coping his situation eversince. His spirit was just like a machine driven him to the new stage of his life. Yes, medical care helps him go through all of these for sure, but the most important thing that we can learn from him is his attitude toward his condition.

He never blame on anyone nor God for what happened to him. Rather, he thank God for the ‘second chance’ to be a better man. He found the positive side of his life by thinking positive things he own. He believe that being positive is his choice; positive in terms of thinking, attitudes, and behaviors.

5. Progress in Work

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Work with Integrity

There are around 5 million people all over the worldlive with Lupus. It strikes mostly women age 15 – 44. However, children, teenagers, and men develop Lupus too. Compare to Caucasians, women of color are two to three times more likely to develop lupus. People of all races and groups of ethnic can develop Lupus.

With regards to the treatment, people who diagnosed having Lupus symptoms may need a family doctor, rheumatologist, clinical immunologist, nephrologist, hematologist, dermatologist, neurologist, cardiologist, endocrinologist, occupational therapist, nurses, psychologist, and social worker.

6.  Discover Your Passion

passion

What’s The Life Purpose of Most Successful People?

We have read the story Erick, a 35 years old man with Lupus. He had shown to us his courage against all the symptoms, pains, and inconvenience feeling due to Lupus. Keeping positive thoughts is the key for him to survive and go trhough it all.

But what exactly the things we must do when we found there is someone around us suffering Lupus? What should they do to deal with this illness?Or, if it’s you, what are you going to do? Please find below some tips might be useful:

  • Accept the reality of having Lupus. Denial will only make it worse. By accepting the condition, you will be in a mind and spiritual state that allows you to move forward instead of stuck in a moment.
  • Find the strength point of yourself. Find something that you never thought before and utilize it to boost your energy to reach your dream. Remember, don’t be surprised when you realize that you have to change your dreams. Changes are somethings that we can not avoid in this life.
  • Find or form a self help group to share your experiences, stories, and take time to listen to others as well. Knowing that you are not alone and surrounded by people similar to you, facilitated by an expert and wise person, will help you reducing your negative feelings.
  • Put attention to your medical care. Lupus deals with physical symptoms and you need medicine to keep you active all over the time.
  • Follow what the experts say, if you need a diet, do it. If you need a low impact exercise, do it.
  • Do not smoke and take enough time to rest your body and soul. Though being positive and active is good, but do not push yourself too hard.
  • Take time to pray and talk to God. This is the way for you to find a peace after all the hard times you’ve been through.

Last but not least, most people with Lupus can live normally or having a near-normal life span. It depends on how severe the disease is. For Erick, living his life as he lives nowadays is another gift from God. All he needs to do is keeping his thoughts, attitudes, and behaviors positively. As he said, “Lupus is killing me, positive thoughts help me survive.”

Contribute to SuccessStory.comHelp our community grow with motivational stories, articles & tips

15 Years Later: How My Life Was Changed By Lupus

A personal account of one woman’s diagnosis with lupus 15 years ago and how she has made her life happy, meaningful and wonderful while managing lupus.

Source: 15 Years Later: How My Life Was Changed By Lupus

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A Life Interrupted by Lupus

“You have lupus.”

My doctor’s words cut through the air in the stark white of her examination room, and right through my soul.  Now it was real.  All the questions, the mystery, all of it just slipped away.  Instead a panic swelled inside my heart.

I looked down at my feet dangling from the table.  My jeweled aqua blue flip flops and the bright pink of my pedicure contrasted so vividly with my summer tan.  My doctor continued to speak, but to me her words were nothing more than a jumbled mess.  The white paper crinkled under my thighs as I moved to peer out the window.   There was a gentleman with a hot dog cart on the corner.  A gardener tending to flowers maybe twenty yards away to the right.  Dozens of cars turning in all different directions; so many people with things to see and do, going about the everyday of life.

What I would have given at that moment to know the oblivion and simplicity of the everyday.

This day, my diagnosis day, began like any other.  It was 1998, and an unusually humid July morning had morphed into a mercilessly hot afternoon.  Ironically what started so ordinarily would conclude extraordinarily.  There would be a new “everyday” to get used to.  There would be lots of pain and uncertainty.  I was twenty five years old, with big dreams on my mind and big experiences on my horizon; like travel and education and love.  Yes, big dreams and big experiences.  But that was before lupus.  This new reality would require adjustments and acceptance: an acceptance of my situation and of me, if I was going to live happily, peacefully and successfully.

To start from the beginning, I need to go back ten months from the day of my diagnosis.  My symptoms revealed themselves gradually.  At first it was a persistent fatigue; that annoying, so-easy-to-dismiss symptom we all experience from time to time.  But it just wouldn’t go away.  The annoying quickly became scary when I couldn’t lift my arms above my head, or lift my head from the pillow.  I then developed an odd sensitivity to certain stimuli.  Odors, bright lights and loud noises would make me sick.  One day, while running errands, I spied a zigzag pattern on a woman’s dress.  Just looking at her was enough to keep me in bed for days; I suffered from nausea and debilitating headaches.   Eventually my symptoms graduated to joint pain and swelling.  Months later, red blisters peppered my cheeks, and red, dry patches popped up on my arms, scalp, chest and back.  My mouth would bleed, and I would feel exceptionally ill and tired after only ten minutes outside under the winter sun.   I experienced hair loss; not random patches falling out but instead a general overall thinning first noticed when my barrettes slipped out so easily.

Finally in June of 1998, I experienced fluid retention that went way beyond the usual hormone fluctuations or indulgence in overly salty food.  The edema and discomfort persisted, and my doctor began to suspect the possibility of autoimmune disease, lupus specifically.  My blood pressure was rising and there was protein in my urine, all signs pointing to kidney problems.  With an urgency I hadn’t seen in her before, she ordered a battery of tests, imploring me to get them done as soon as possible.  All came back in time for that July appointment, and all revealed a myriad of issues, collectively confirming a lupus diagnosis.  My blood showed anemia and a very low white blood cell count.  The standard anti-nuclear antibody test and anti-DNA antibody test were positive, suggesting lupus.  The realization finally came when biopsies of my skin and kidney revealed deposits of antibodies in my tissues.

Here I am, nearly fifteen years later.  Since that fateful day, I have had my moments of stable health and normal immune functioning, but I have had many periods of brutal flares.  When it happens, lupus decides to make me extremely tired.  It settles into my joints, making simple movements and activities nearly impossible.  I sometimes suffer from pleuritis and pericarditis, making it difficult to breathe or feel energetic; but overall, it is my kidney function that suffers consistently.  The unpredictable nature of lupus has forcibly shaped my choices, too.  I have had to rethink things like graduate school, career paths and pregnancy, choices that have proven painful at times.  Thankfully, I have found joy and opportunity in other aspects of my life.

Conventional drug therapies have not been helpful in my case.  Side effects have been difficult to deal with, and some drugs have been cost prohibitive.  Early on in this journey I tried steroids, prednisone specifically.  I experienced weight gain and other changes in my appearance, and I really wasn’t feeling better.  Anti-malarial therapies were suggested, but side effects were a concern.  My most recent attempts with conventional drugs included immunosuppressive therapy.  I tried CellCept for several months.  The aggressive regimen did nothing to improve my symptoms.  It made me very sick and its cost was considerable.  It simply wasn’t reasonable to continue.

Despite the failure of conventional medications in my case, there are things that have worked for me, and have worked very well.  I have an awesome, driven and dedicated primary doctor who stays on top of the latest research, and coordinates all my care with colleagues she knows and trusts.   In addition to being female, she is also young, and I believe that common ground we share means everything in the success of our communication.  Having her in my corner is healing, more than words can truly express.  I also have the love of a wonderful spouse and mom.  My friends understand as best they can, and it means a lot.  And I have two beautiful, love bug pups who comfort me with every wet, loving kiss.

I do the usual things that we lupus folks should do to feel better and stronger.  I make sure I get the rest I need.  I stay out of the sun.  I avoid alcohol, and I try to stick to simple, easily digestible foods that don’t tax my system.  I try to limit my sugar intake, prescribe to a mostly vegetarian diet, and place an emphasis on healthy fats.

Acupuncture has worked wonders in managing what I call my “secondary” ailments.  When I receive consistent treatment I sleep more deeply and my digestion is better; my pain is lessened and overall I feel that my emotions are stronger and my life feels less heavy.  I am also working hard at mastering the art of letting go.  Letting go of things like toxic relationships, being rigid, and trying to be perfect.  Because if lupus teaches you only one thing, it teaches you that life doesn’t always go as planned.

I also created my own career.  After way too many flares and dark days, I had to have a complete say over my hours and workload.  In February 2012 I launched my happy and healthy living blog, and in August 2012 I independently published my first book.  I have many more planned, and the future looks bright.  It is empowering to know that I am my own boss.  The freedom allows me to embrace my good days and better manage my bad ones.

What is the best medicine of all?   Gratitude for everything that is good in my life. Knowing I matter, and accepting the reality of lupus as part of my journey.  I realize now that perceived limitations are only that, perceived.  Ultimately, lupus opened doors I never thought possible, and gave me chances I never saw coming.  It has been quite an evolution.  Once a scared twenty-something, I am now a soon-to-be forty-something with a growing wisdom and appreciation for the things that count.

And I’m still here.

Strong and confident.

Full of life.

 

About the Author
Allyson Clayton launched her happy and healthy living blog Love Your Dash in February 2012, and in August 2012 independently published her first book: The Word Is Love – Lessons In Self-Acceptance, Relationships & Other Things That Really Matter.  She lives, laughs and loves in Northern California with her amazing husband and canine children Jack and Grace.  To learn more about Allyson and her work, visit www.loveyourdash.com.

 

This post contains opinions of the author.  AutoimmuneMom.com is not a medical practice and does not provide medical advice, diagnosis, or treatment.  It is your responsibility to seek diagnosis, treatment, and advice from qualified providers based on your condition and particular circumstances.  Camino Real Ventures, Inc., the company that makes AutoimmuneMom.com available to you, does not endorse nor recommend any products, practices, treatment methods, tests, physicians, service providers, procedures, clinical trials, opinions or information available on this website.  Your use of the website is subject to our Terms of Use and Privacy Policy

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Comments

  1. Your post was music to my ears and therapy for my brain! I was hospitalized twice since January 19th 2013 with fluid around my heart and lungs. My pulmonologist mentioned Mixed Connective Tissue Disease, but have not been given a diagnosis. I see an Immunologist on May 7. This has been a long anlife,inter

Molly’s Fund Stories of Hope – Molly’s Fund

Our stories, our struggles, and our triumphs in the fight against lupus. Chris was our featured Story of Hope at our 2013 gala fundraiser, Serving Up Style.

Source: Molly’s Fund Stories of Hope – Molly’s Fund

 

 

THROWN FOR A LOOP WITH LUPUS

Me vs Mixed Connective Tissue Disease

It has been entirely too long since the last time I updated and as I write down my thoughts now I’m not even sure how I feel or really what to write.  I have really been struggling since March of this year and trying to find the right combination. Summer rolled into my life and as the norm I was starting to feel better. The warmth and sunshine, as well as, the fresh air really can help a person feel good again.  I truly enjoyed my summer so much, with daily walks, teaching yoga, spending time with my family and especially my husband.

As we approached the end of summer I was starting to feel a little off again and had a lot of soreness in my hands and hips.  Luckily I had a doctor’s appointment coming up so I waited it out until then but found myself using over…

View original post 473 more words

Systemic lupus erythematosus: CNS vasculitis | Radiology Case | Radiopaedia.org

Rheumatological markers for systemic lupus erythematosus (SLE) were positive and indicated active disease. Diagnosis of CNS vasculitis was made clinically and the risk of brain biopsy vs trial of steroids was weighed. The patient decided to tria…

Source: Systemic lupus erythematosus: CNS vasculitis | Radiology Case | Radiopaedia.org

WE ARE EQUAL AS EVERYONE ELSE

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